Are official statistics published annually covering, at the minimum, the number, age group, sex, and care provided to all those persons with disabilities living in institutions?
This question refers only to official statistics and only to ‘institutions’. The official figures need to cover all kind of ‘institutions’ where persons with disabilities live. These will include: old people’s homes, prisons, ‘asylums for old people and adult invalids’, ‘asylums for children-invalids’, ‘boarding school for orphans’, secure facilities, ‘centres for placement and rehabilitation’, ‘psychiatric institutions’, sheltered accommodation, residential homes, residential educational facilities etc. The term ‘asylum’ may, quite understandably, be found by many to be offensive, and burdened with history. The term is, however, still in use in a number of states and has, therefore, been included in the (not exhaustive) list of kinds of institution. As important as whether such data are available is their quality. If they are available, are they of acceptable quality? And does the collection of data respect the right to data privacy – highly important in this instance.

Relates to Convention Article:

  • No.19, Living independently and being included in the community
  • No.31, Statistics and data collection

In detail

Brief explanation of the question

Article 31 prescribes that “States Parties undertake to collect appropriate information, including statistical and research data, to enable them to formulate and implement policies to give effect to the present Convention”.

This question refers only to official statistics and only to “institutions”. This question was chosen since “institutions” are at the heart of any political decision-making. A lack of trusted or available information on this sensitive issue would be a major obstacle to good governance.

Summary of results

Looking at the availability of data about persons living in institutions, several comments indicate that no institutions exist in some of the countries (e.g. Nicaragua, South Sudan, Cook Islands, Laos or Mexico). Others complain that when statistics are published, they are often too old to give a clear picture of the current situation.

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