Keywords: India, Children aged 0-6, community-based rehabilitation, early intervention, rural, app, Ashoka Fellow
|Name of Organisation||Amar Seva Sagnam|
|Type of organisation||NGO|
|Funding model||Public funding ($900,000 USD from Grand Challenges Canada, Handi-care Intl. and Azim Premji Philanthropic Initiative. Funding from Govt of Tamil Nadu is being secured to scale up the policy throughout the state.|
There are 54,000 children (age 0-6) with disabilities / delayed development in rural Tamil Nadu (state in India). There is a lack of access to early intervention (EI) therapy services for these children due to a lack of trained professionals and programs in rural areas and long transport time to urban areas where such programs exist.
40,733 children have been screened for delayed development. 1102 children have received early intervention therapy. 1858 health workers trained. 39,423 people have improved awareness on child development and disability as a result of our awareness programs.
75% of children in our program are enrolled in school by age 5 compared to 55% of disabled children in the rest of Tamil Nadu, 1700 caregivers supported in the program with 74% showing decreased strain, 75% having increased empowerment and 62% having improved child interactions.
Gross Motor Development of children with Cerebral Palsy matching and exceeding gold standard gross motor development curves established in the literature for children with 5 levels of severity.
Amar Seva Sagnam is headed by people with disabilities including our president who has a spinal cord injury and our honorary secretary who has muscular dystrophy. The early intervention program has been guided by parents of children with disabilities through early intervention parent participation groups who are a major stakeholder group in decision making and policy formation.
THEORY OF CHANGE
We asked projects to outline their impact model (also called Theory of Change) – their main target groups, the key activities they offer these target groups, and what impact they want to achieve:
|Children with Delayed Development / Disabilities||Therapy||Improved child development in the areas of cognition, self-care, mobility, speech, gross motor, social, emotional and academic using standardized scales: GMFM (gross motor) weeFIM (self-care, mobility, cognitive) FACP (social, emotional, academic) COM- DEALL (speech). Increased child enrollment in school|
|Caregivers||Training and Family-Centered Care||Reduction in caregiver Strain and Burden as measured by the MCSI (modified caregiver strain index). Increased Family Empowerment as measured by the FES (Family Empowerment Scale) and Increase engagement with child measured through the CI (child interaction scale) Parents able to set goals for their child’s therapy using the COPM (Canadian|
Occupational Performance Measure).
|Community Stakeholders||Awareness and Education Programs||Improved knowledge, awareness about child development, child disability and early intervention program and reduced stigma.|