“A few weeks later I was using the little vision I had, together with the white cane and echo location.”
My name is Danyl and I am 12 years old. I was a normal kid, running around with my friends and biking through the nearby hills, until one day, when I was eight, I woke up in the middle of the night. It was hard to breathe so I woke my dad and he phoned an ambulance. The last thing I said was: “I’m dying, dad! I’m dying!” I was on life support for several weeks, and for months afterwards I was completely blind and couldn’t walk at all.
The first week of school in August 2007, three years later, you brought Kerrie and Alex to my primary school. They were blind too, and I think you were training them to be teachers like you. By then, I still didn’t really know a lot about what had happened to me. When you guys first told me what you were about, I honestly thought you were joking. But by the end of the first day, I thought what you guys taught me was brilliant! A few months later, when you and Alex came back to my school, I had practiced my click and was able to do it properly, and I was using the hiking stick and learning the basics of the white cane. I found it really hard at first mixing all three – clicking, walking with the hiking stick, and using the cane. But when you and Alex returned again the next summer, I was surprised by how much walking and clicking we practiced, and I found it became easier.
A few weeks later, I was a lot more confident. When I first came around in the hospital and I really wanted to walk and see again, I didn’t think that all of this would be done for me. Now I definitely think I will be able to walk again and know my ability to see is improving, so I am really, really happy with all the help that I’ve received.
To find more about how the World Access for the Blind has created a technique that helps the visually impaired to use their own ‘human sonar’ to perceive their surroundings by reading the factsheet.
“Listening to audiobooks fills all of my free time.”
My name is Seren and I am from Kfar Bara, a village in the Triangle Area of Israel. I am very happy to express my enormous gratitude to AlManarah and share with you my experience of how its International Accessible Library saved me emotionally. I used to work as a nurse until I unexpectedly developed an eye disease, which resulted in blindness. I was so frustrated and depressed with my new condition I even contemplated committing suicide.
When I heard about the library from my brother, I became totally consumed with listening to audiobooks, which now fill all of my free time. The audio library of AlManarah has completely empowered me and enabled me to face the sudden loss of my vision.
Find out more about how Almanarah has developed the International Accessible Library by reading the factsheet.
Does your organisation help improve the lives of persons with disabilities? The Zero Project wants to find out about your projects, products, programs and services, and we want to share them with the world!
Awardee projects will be invited to present at the annual Zero Project Conference at the United Nations in Vienna in front of over 600 experts and leaders in the disability community from more than 70 countries. The conference is also live-streamed around the world and the best bits are also shared via social media, which reached 150,000 people in 2018.
We select projects of all shapes and sizes, from global leaders in the private sector with hundreds of thousands of employees, to small local enterprises, so don’t miss your chance to nominate!
This year we are looking at Independent Living and Political Participation – So get thinking of your projects that improve the lives of persons with disabilities on these themes.
I am Barb Most, and my first contact with South America for All was a trip to Ecuador/Galapagos and, later, to Peru’s Machu Picchu. I have a progressive neurodegenerative disease, very similar to Lou Gehrig’s disease, called Multiple Systems Atrophy, a rare brain disorder. It affects mobility by paralysis, ataxia, and incoordination. I had the limited use of a walker during my trip to Ecuador, but for the Peru trip I was mostly limited to a wheelchair.
Prior to my diagnosis, I was an active professional as a medical device auditor, which required travel both in the United States and abroad. I also had a busy personal life with my husband, son, and grandchildren, including hunting, fishing, and travelling. Then everything changed, but we decided we hadn’t lost our sense of fun and adventure or of our love of family travel.
South America for All provided the support and framework to travel with mobility impairments by planning for accessible restaurants, transportation, and hotels. They use custom designed wheelchairs for ocean beaches, rainforests, and the stairways of Machu Picchu. South America for All made the impossible possible, and also gave my husband and me the courage and confidence to plan other trips with our family.
Find out more about how South America For All offers tours to various South America destinations that are accessible by wheelchair users by reading the factsheet.
My name is Supriya Limbu and I live in eastern Nepal. I am a 12-year-old girl with cerebral palsy diplegia. My house is on a remote hill, adding more challenges in my day-to-day living.
I had a dream to go to school like other children, but because of my disability and difficult geographical terrain, it remained only a dream. I was in need of support from my family members even to go to my kitchen and to use the toilet.
When the Inspire2Care programme of the Karuna Foundation was introduced in my village, it opened ways to fulfil my dream. The programme helped my family to modify my living surroundings, including the construction of ramps from my room to the kitchen, front yard, and toilet. And the provision of a wheelchair has changed my daily living tremendously!
I am also going to school now, but my grandfather has to carry me on his back for more than half an hour each way as there is no road where a wheelchair can pass. I am growing and my body is changing, thus carrying me is becoming a challenge. In school, however, I have received a special chair, though I still need support to go to the toilet. Many friends come to speak with me and to offer help, and the teachers are friendly too!
I am happy with all these possibilities and changes :).
Find out more about how Karuna Foundation created more awareness about the importance of disability-inclusive societies by reading the factsheet.
I am Ramu, and I run a musical troupe along with my wife and my three brothers (who are also blind, like me). We’ve never received any formal education, but we have all learned music. We formed this troupe last year, when our father, a daily wage labourer, passed away and we were not able to run the household with the disability pension we received.
The music troupe has helped us to utilize the skills we’d developed over many years. However, we had no idea where we’d perform, so we would perform on roadsides, and people would pay us whatever they thought fit. We got only a few hundred rupees – not enough for all of us.
When I told my friend about this problem, he made me call Namma Vaani, and I knew I had found the right platform for me and my family. Through Namma Vaani, I heard stories of other persons with disabilities who had found solutions to overcome their barriers and had become financially independent, and I received advice on how my brothers and I could live a life of dignity and independence.
When I decided to record a clip about my troupe, offering to perform at events, I wasn’t expecting much out of it. After all, why would people listen to me? Imagine my surprise when we booked six events within one month – all through Namma Vaani! We earned 30,000 rupees, finally enough money to arrange for a critical operation for my niece, who was rapidly losing her eyesight.
I still post frequently on Namma Vaani. We have five more events lined up, and I’m sure we’ll get many more in the future. I started this journey thinking that as long as I could earn money, I would be fine, but I found something much bigger – dignity. I now have a platform where I can speak and be heard, and I now actively seek out the opportunities I want, instead of waiting for opportunities to be given to me.
Find out more how Namma Vaani developed a mobile phone-based information sharing service about accessible opportunities in rural India by reading the factsheet.
“A vocal-tactile paving system for the independence of visually impaired people.”
My name is Giulio Nardone, and I am blind. As the National President of the Italian Association of Visually Impaired People, the goal of my last 40 years’ activity has been to increase the autonomy of visually impaired people in all circumstances of their lives.
As a blind person, I soon learned to move on my own, recognizing obstacles through my white cane. The real problem, however, has always been to move around in wide-open areas without natural guides. In 2013, in cooperation with the company JKJ srl, we added to every tactile tile a Radio Frequency Tag (created by myself back in 1995) that can send vocal messages to my smartphone and headphones using a special white cane.
Using this new version of tactile paving, called LVE System (Loges-Vet-Evolution), it is much easier for me to follow a path, to know the exact point where I am, the name of streets, the location of the several services on my route, and even the hours of operation. Before LVE, all this was impossible. This now allows me to be totally independent, as I do not need anyone to escort me in order to move freely within the city. Once the system spreads to stations, airports, hospitals, and public spaces, the problems of orientation and security of visually impaired people will be progressively solved.
Read more about how JKJ Srl and Associazione Disabili Visivi Onlus help persons with visual impairments to navigate safelyby reading the factsheet.
“I have memorized my evacuation map, and my neighbours better understand my needs and whereabouts.”
My name is Rosmawati, aged 45, and I am blind. As a woman who lives at home, I used to be a victim of any natural disaster that came upon us. Also, being on my own, when I was out of the house I would run into anything in front of me, such as walls and trees, and I would even fall into a trench and end up in the hospital. Therefore, in times of a disaster I would usually just stay in front of the house waiting to be evacuated by volunteers. But most people are busy evacuating their own family before they can think of helping us persons with disabilities.
After attending the workshop held by FKM BKA, however, I now have more knowledge about how to evacuate myself in times of emergency. I have memorized my evacuation map, which way I should run, and how I can save myself in the event of an earthquake or tsunami. But more than that, now my neighbours have begun to understand my needs and whereabouts in the village, so that in case of disaster I will not be left alone.
Interestingly, I was also informed by the government that if I must go to a refugee camp, I will receive special needs support. So now I can be a little more calm – ready and resilient to face disaster.
Find out more about how FKM BKA created inclusive evacuation strategies by reading the factsheet.
“Now I am managing my own automobile repair agency.”
My name is Shashika Chathuranga. I am 33 and married. I was very keen on becoming an automobile mechanic and had an opportunity to engage with a well reputed automobile repair agency in Buttala. One day, however, I got a headache and fell down, and it turned out that I was partly paralyzed for a while. After having received therapy, however, I am now capable of walking and of working with my right hand. However, this situation resulted in my unemployment, which was a very hard experience since I had a family to take care of.
Even though I could still use my skills in automobile repairing, agencies were reluctant to hire me because of my disability. I decided, therefore, to open my own repair agency at home – with the great assistance of my wife. The one problem was that I needed funds to buy tools, and that is where the Disability Inclusive Programme of the Uva Provincial Council came to my assistance. Now I am managing my own agency, and I am planning to extend my services further to the Okkampitiya city area as well.
When I became paralyzed, I thought it was all over for me and nothing was possible. Now I want to emphasize that nothing is impossible!
Read more about how the Uva Provincial Council is improving universal inclusion in Moneragala by reading the factsheet.
We are excited to announce that the Zero Project call for nominations 2019 is open! #ZeroCall19!
We are searching for innovations worldwide and we ask you to nominate Innovative Practices – projects, programs, products and services, or Innovative Policies – Laws, standards and regulations etc. – that allow persons with disabilities to live more independently or improve participation in political activities.
Awarded projects will be invited to the 2019 Zero Project Conference at the United Nations in Vienna to present their work in front of leaders and experts from around the world. They will also be published in the annual Zero Project Report and be featured on the website and on social media across 2019.
Helm Egypt receiving the Zero Project 2018 award from the Zero Project
Everyone can nominate any Practice or Policy and we also highly encourage you to nominate your own!
So get started right away. The deadline for submission is 10th June 2018. You can sign up make your nomination in one of six languages English, French, German, Spanish, Russian and Arabic by visiting our nomination IT-platform.
Update 7th June 2018: The deadline has now been extended to 1st July 2018.