Are official statistics published annually covering, at the minimum, the number, age group, gender ethnicity and primary disability for all persons with disabilities living in residential care settings?

Explanation

This question refers only to official statistics and only to “institutions”. The official figures need to cover all types of residential care where persons with disabilities live together in a group. These include: social care institutions (also referred to as centres for placement and rehabilitation etc.), psychiatric institutions (also referred to as asylums), boarding schools for children, orphanages, sheltered housing, group homes, old people’s homes and all other forms of residential care, so that all forms of residential care are covered.,  etc. As important as whether such data are available is their quality. If they are available, are they of acceptable quality?

In detail

Summary

42.5% of respondents agreeing that no such statistics are officially published due to absent frameworks to support data collection, or other barriers such as:

  • Ethics: statistics are not accountable of the current situation due to Privacy, data protection and confidentiality reasons
  • Statistics often lack in accuracy, especially since they are dependent on censuses and thus on whether people with disabilities are registered.
  • Initiatives to collect such data are often reported to be incomplete, or ineffective
Comments

“Such statistics is not available centrally in the Social Service Department of the government. So it is difficult to know such collective information. Government has initiated 64 integrated schools for the blind students with accommodation of 10 visually impaired students among them 33 have completed their residential facilities.” (Salma Mahbub- Protibonhi Nagarik Shangathaner Parishad (PNSP)- Bangladesh)

“Data is published annually on Ministry of Social Affairs website but does not have all the distinctions. It is also applied to only these persons who are officially registered as disabled” (Luule Sakkeus, Senior Researcher, Estonian Institute for Population Studies, Tallinn Univeristy)

CRPD Article

Article 31: Statistics and data collection

“1. States Parties undertake to collect appropriate information, including statistical and research data, to enable them to formulate and implement policies to give effect to the present Convention. The process of collecting and maintaining this information shall:

a) Comply with legally established safeguards, including legislation on data protection, to ensure confidentiality and respect for the privacy of persons with disabilities;

b) Comply with internationally accepted norms to protect human rights and fundamental freedoms and ethical principles in the collection and use of statistics.

2. The information collected in accordance with this article shall be disaggregated, as appropriate, and used to help assess the implementation of States Parties’ obligations under the present Convention and to identify and address the barriers faced by persons with disabilities in exercising their rights.

3. States Parties shall assume responsibility for the dissemination of these statistics and ensure their accessibility to persons with disabilities and others.”

(UN Convention on the Rights of Persons with Disabilities)